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General Resources:

FindMeCure

An online platform allowing every person struggling with a medical condition to access treatments in development and provides free access to more than 90% of the clinical trials worldwide. You can search, find, apply and participate in the right clinical trials for you within few clicks. The treatments that are already available are not your only option. Inform yourself about clinical trials happening worldwide right now!

Befrienders

Befrienders Worldwide is a charity that helps people who are considering suicide or experiencing general emotional distress. They have 349 emotional support centers in 32 countries, reaching an estimated 7 million people each year.

Patients Like Me

A very straightforward resource for researching many illnesses. This website feels like it can be trusted because it offers what you need immediately without any hidden agenda.

CaringBridge

This is a place to create your own website so you can stay connected with all the important people in your life during your illness.

Songs of Love Foundation

Create a song about you, in any language or style! If you have a medical or emotional challenge, get a free, personalized song made.

Cancer-specific resources

13thirty

Friendly information about possible ways to connect or learn about cancer specifically, 13Thirty is about teaching teens how to deal with cancer.

Look Good…Feel Better

If you are a teen boy or girl with cancer and are concerned about your appearance or the social implications of having cancer, this site can help.

Stupid Cancer

This edgy site knows how cancer really sucks and connects you with other young adults dealing with what you are.

Imerman Angels

Imerman Angels matches cancer patient of any age, cancer type, or physical location with a “mentor angel” who is seeking support with someone just like them. A Mentor Angel is a cancer survivor or caregiver who has faced the same type of cancer and all services are free.

Mylifeline

This is an online social media outlet dedicated to empowering cancer patients and caregivers to build an online support community of family and friends to foster connection, inspiration, and healing through free, personalized websites. This organization strives to be a visible option for each patient and caregiver to form the support network to take care of their needs. Online services include cancer-specific resources, ability to post requests for help and invite close friends and loved ones to follow your updates.

Cancer and Careers

Cancer and Careers knows from research that a majority of cancer survivors and people with cancer are eager to continue working, but need support to balance their health and work demands. The organization provides support for people with cancer who are managing a career. They provide expert advice, interactive tools, and educational events to empower cancer fighters and survivors in the workplace.

Team Maggie For a Cure

This organization provides fertility support for young adults facing cancer. Team Maggie knows that certain cancer treatments can lead to infertility and wants to help you beat your cancer for you and the next generation. Services provided include support, education, and financial assistance to teens and young adults with cancer seeking fertility preservation.

The Cancer Legal Center

This center provides cancer-related legal information and resources to people nationwide. Services provided include a telephone assistance line, conferences, seminars, workshops, education, and outreach programs, and other cancer community activities. Overall, resources for legal issues are provided.

Cancer Care

CancerCare is the leading national organization dedicated to providing free, professional support services. These services are provided to anyone affected by cancer as a patient or caregiver and include counseling, support groups, educational workshops, publications, and financial assistance. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

The Cancer Support Community

The Cancer Support Community, with Gilda’s Club association, is the largest professionally led nonprofit network of cancer support worldwide. The organization is dedicated to ensuring that all people affected by cancer, patients and caregivers, are empowered by knowledge, strengthened by action, and sustained by community. Services include the highest quality emotional and social support as well as online and over the phone support.

These resources were provided by our friends at Imerman Angels.

Other illness-specific resources

Diabetes

Teen Toolkit

Navigating the teenage years with type 1 diabetes can be difficult. This guide
can help parents and teens make the journey a much more pleasant—and even
enjoyable—experience.

College Diabetes Network

College Diabetes Network the info you need for college and T1D.

Teen Mental Health

Is a source of best available evidence-based resources & information for youth, parents, educators & healthcare providers.

Crisis Text Line

If you feel like you are in crisis or need to work through a difficult period, someone can help and is only a text away. Text HOME to 741741|24/7. Crisis support in the US.

Give Us the Floor

Excellent original content and a moderated safe-space online helps teen struggling with emotional issues realize they are not alone YouTube Channel Instagram profile!

Lyme Disease

Touched by Lyme has info about all things Lyme including a Facebook group.

Crohn’s (& Colitis) and IBD

Just like me

This site connects you with the information and resources you need to enjoy life and all that comes with it.

Home Advisor

How to create a healthy home environment that will soothe autoimmune symptoms. Nutrition Tips for Inflammatory Bowel Disease

Nutrition Tips for Inflammatory Bowel Disease

Complications of Crohn’s disease

Unfortunately having Crohn’s disease means that you may be at risk of developing some complications. This article has some of the complications found in people with Crohn’s disease.

Duchenne’s Muscular Dystrophy

Information and support for young men with Duchenne’s.

Epilepsy Foundation

They have a wide array of programs serve people living with epilepsy, families, friends, and caregivers.

Burns

Kids and teens facing the unexpected trauma of a burn injury need special attention as they get back to living. resources for kid and teen survivors, siblings of survivors, children of adult survivors, and their communities.

Paralysis

Life Rolls On Foundation. Dedicated to improving the quality of life for young people affected by spinal cord injury.

Spinal cord Injury

United spinal Association is dedicated to enhancing the quality of life of people living with spinal cord injuries and disorder.

Comminuity of healing

Project heal is a community of healing and treatment access programs for young people with eating disorders.

Congenital Heart Disease

Teen-specific information about common concerns when growing up with CHD.

Cystic Fibrosis

Here you can find information, education and support for young people living with cystic fibrosis.

HIV/AIDS

Teen Tribe connects individuals affected by HIV/AIDS for support and emotional well-being, sharing stories, and encouragement.